Annotated Bibliography
02/19/2024
Integrated Health Science Captstone
Lupus
Askanase, A. D., Daly, R. P., Okado, M., Neville, K., Pong, A., Hanrahan, L. M., & Merrill, J. T. (2019). Development and content validity of the Lupus Foundation of America Rapid Evaluation of Activity in Lupus (LFA-REALTM): A patient-reported outcome measure for lupus disease activity. Health and Quality of Life Outcomes, 17. https://doi.org/10.1186/s12955-019-1151-8 The scholarly article above, written by Askanase and others, discusses the research that the Lupus Foundation of America conducted on the rapid activity centered around the autoimmune disorder, Lupus. Lupus is an autoimmune disorder that occurs when the body’s immune system attacks its organs and tissues. This article focuses on a patient-centered perspective for lupus and clinical, evaluating over four weeks of progress, symptoms, and any additional parts of lupus. For patient perspectives, this is done through questionaries, with 25 participating lupus patients. This article pertains to my specified research as it measures different severities of lupus and allows for patient-based research, getting qualitative and quantitative data. Data such as this can track lupus symptoms and possible preventions by analyzing the development of the disease over time, which aids in overall research.
Nonetheless, the results from this research found that the LFA-REAL PRO is ready to
be used to provide reliable and valid testing in lupus tests (Askanase et. al, 2019).
Putri, P. Z., Hamijoyo, L., & Sahiratmadja, E. (2022). The Role of Diet in Influencing the
Diversity of Gut Microbiome Related to Lupus Disease Activities: A Systematic Review.
International Journal of Microbiology, 2022. https://doi.org/10.1155/2022/6908677
The article above was written by microbiology researchers discussing the role of one’s
diet and how it can be influential in the diversity of gut microbiome (Putri et. al, 2022).
The diversity present in the gut microbiome can be related to the activity of lupus activity
in one’s body. Gut microbiome dysbiosis can have a significant effect on the immune
system of the host it is occurring in. The researchers begin their article by introducing
what lupus is and its detrimental effect on one’s immune system (Putri et. al, 2022).
Over the last couple of decades, more research has been conducted trying to find the
relationship between one’s diet and lupus. The main reason for this research is to
determine if there was an easier way to live with lupus as maintaining a specific diet can
easily be monitored and followed if the individual stuck with it. The main variables of this
study were individuals with lupus who were not taking any antibiotics or other drugs;
therefore, the study could be performed solely based on diet effect on a regular
individual with “just lupus”. Nonetheless, the researchers did determine that there was a
beneficial effect on an individual with lupus who stuck to a specific diet.
Martz, C. D., Webb-Detiege, T., Danila, M. I., & Chae, D. H. (2024). Sociodemographic
profiles and organ damage are accural in the Black Women’s Experience Living with
Lupus study. Lupus, 33(1), 17–25. https://doi.org/10.1177/09612033231218923
Martz and his fellow researchers conducted thorough research that compares lupus
effects on individuals from different backgrounds (2024). The main reason for this study
was to determine that individuals from different backgrounds experienced lupus
differently. For instance, Martz
and others started their article off with the finding that Black women with lupus are found
to have greater organ damage at younger ages than White women do (2024). Despite
suffering from the same autoimmune disorder, Black women will suffer more for longer
periods of their lives. The reason that Black women are suffering more and sooner in
their lives is because of the lack of resources of socioeconomic resources which causes
the risk of increasing the disease severity earlier on in their lives. Poverty also plays a
significant role in how severe lupus is in the Black women’s community. No matter the
race, age, demographic, etc., of an individual, all treatment must be given the same as
well as an opportunity to not have to deal with the disease at a more detrimental rate
(Martz et. al, 2024).
Pereira, M. G., Duarte, S., Ferraz, A., Santos, M., & Fontes, L. (2020). Quality of life in
patients with systemic lupus erythematosus: the mediator role of psychological
morbidity and disease activity. Psychology, Health & Medicine, 25(10), 1247–1257.
https://doi.org/10.1080/13548506.2020.1728350
Pereira and fellow researchers are credited for writing the article above that discusses
the findings on the quality of life in patients with systemic lupus (2020). The researchers
began their article by laying out the facts on what lupus is, the negative effects of it, the
treatment, and the symptoms that lupus has on an individual who is a victim of the
autoimmune disorder. The study was conducted amongst 104 women suffering from
lupus who experienced fatigue, poor body image, poor quality of life, and depression
(Pereira et. al, 2020). The psychological effects that lupus has on an individual result in
psychological morbidity, which is a sign of severe anxiety and depression. It was
suggested that individuals with lupus should be monitored to ensure their thoughts on
their body image, fatigue levels, and depression severity. These individuals must be
given access to medications, therapy treatments, or monitored help to ensure that they
are not suffering from not only lupus but other detrimental effects that can take place on
the mind.
Syuji Takei, Toru Igarashi, Tomohiro Kubota, Eriko Tanaka, Kenichi Yamaguchi, Kazuko
Yamazaki, Yasuhiko Itoh, Satoru Arai, Keisuke Okamoto, & Masaaki Mori. (2022).
Clinical practice guidance for childhood-onset systemic lupus
erythematosus–secondary publication. Modern Rheumatology, 32(2), 239–247.
https://doi.org/10.1093/mr/roab002
Williams, E. M., Egede, L., Oates, J. C., Dismuke, C. L., Ramakrishnan, V., Faith, T. D.,
Johnson, H., & Rose, J. (2019). Peer approaches to self-management (PALS):
comparing a peer mentoring approach for disease self-management in African
American women with lupus with a social support control: study protocol for a
randomized controlled trial. Trials, 20(1), 529.
https://doi.org/10.1186/s13063-019-3580-4
Summerville, J., Farahani, N., Yalavarthi, B., Aboul-Hassan, D., Rajgarhia, S., Xiao, L.
Z., Yu, C., Clauw, D. J., Kahlenberg, J. M., DeJonckheere, M., & Bergmans, R. S.
(2024). A qualitative study on opportunities to improve research engagement and
inclusion of Black adults with systemic lupus erythematosus. Lupus, 33(1), 58–67.
https://doi.org/10.1177/09612033231220168
nnotated Bibliography
02/19/2024
Integrated Health Science Captstone
Lupus
Askanase, A. D., Daly, R. P., Okado, M., Neville, K., Pong, A., Hanrahan, L. M., &
Merrill, J. T.
(2019). Development and content validity of the Lupus Foundation of America Rapid
Evaluation of Activity in Lupus (LFA-REALTM): A patient-reported outcome measure for
lupus disease activity. Health and Quality of Life Outcomes, 17.
https://doi.org/10.1186/s12955-019-1151-8 The scholarly article above, written by
Askanase and others, discusses the research that the Lupus Foundation of America
conducted on the rapid activity centered around the autoimmune disorder, Lupus. Lupus
is an autoimmune disorder that occurs when the body’s immune system attacks its
organs and tissues. This article focuses on a patient-centered perspective for lupus and
clinical, evaluating over four weeks of progress, symptoms, and any additional parts of
lupus. For patient perspectives, this is done through questionaries, with 25 participating
lupus patients. This article pertains to my specified research as it measures different
severities of lupus and allows for patient-based research, getting qualitative and
quantitative data. Data such as this can track lupus symptoms and possible preventions
by analyzing the development of the disease over time, which aids in overall research.
Nonetheless, the results from this research found that the LFA-REAL PRO is ready to
be used to provide reliable and valid testing in lupus tests (Askanase et. al, 2019).
Putri, P. Z., Hamijoyo, L., & Sahiratmadja, E. (2022). The Role of Diet in Influencing the
Diversity of Gut Microbiome Related to Lupus Disease Activities: A Systematic Review.
International Journal of Microbiology, 2022. https://doi.org/10.1155/2022/6908677
The article above was written by microbiology researchers discussing the role of one’s
diet and how it can be influential in the diversity of gut microbiome (Putri et. al, 2022).
The diversity present in the gut microbiome can be related to the activity of lupus activity
in one’s body. Gut microbiome dysbiosis can have a significant effect on the immune
system of the host it is occurring in. The researchers begin their article by introducing
what lupus is and its detrimental effect on one’s immune system (Putri et. al, 2022).
Over the last couple of decades, more research has been conducted trying to find the
relationship between one’s diet and lupus. The main reason for this research is to
determine if there was an easier way to live with lupus as maintaining a specific diet can
easily be monitored and followed if the individual stuck with it. The main variables of this
study were individuals with lupus who were not taking any antibiotics or other drugs;
therefore, the study could be performed solely based on diet effect on a regular
individual with “just lupus”. Nonetheless, the researchers did determine that there was a
beneficial effect on an individual with lupus who stuck to a specific diet.
Martz, C. D., Webb-Detiege, T., Danila, M. I., & Chae, D. H. (2024). Sociodemographic
profiles and organ damage are accural in the Black Women’s Experience Living with
Lupus study. Lupus, 33(1), 17–25. https://doi.org/10.1177/09612033231218923
Martz and his fellow researchers conducted thorough research that compares lupus
effects on individuals from different backgrounds (2024). The main reason for this study
was to determine that individuals from different backgrounds experienced lupus
differently. For instance, Martz
and others started their article off with the finding that Black women with lupus are found
to have greater organ damage at younger ages than White women do (2024). Despite
suffering from the same autoimmune disorder, Black women will suffer more for longer
periods of their lives. The reason that Black women are suffering more and sooner in
their lives is because of the lack of resources of socioeconomic resources which causes
the risk of increasing the disease severity earlier on in their lives. Poverty also plays a
significant role in how severe lupus is in the Black women’s community. No matter the
race, age, demographic, etc., of an individual, all treatment must be given the same as
well as an opportunity to not have to deal with the disease at a more detrimental rate
(Martz et. al, 2024).
Pereira, M. G., Duarte, S., Ferraz, A., Santos, M., & Fontes, L. (2020). Quality of life in
patients with systemic lupus erythematosus: the mediator role of psychological
morbidity and disease activity. Psychology, Health & Medicine, 25(10), 1247–1257.
https://doi.org/10.1080/13548506.2020.1728350
Pereira and fellow researchers are credited for writing the article above that discusses
the findings on the quality of life in patients with systemic lupus (2020). The researchers
began their article by laying out the facts on what lupus is, the negative effects of it, the
treatment, and the symptoms that lupus has on an individual who is a victim of the
autoimmune disorder. The study was conducted amongst 104 women suffering from
lupus who experienced fatigue, poor body image, poor quality of life, and depression
(Pereira et. al, 2020). The psychological effects that lupus has on an individual result in
psychological morbidity, which is a sign of severe anxiety and depression. It was
suggested that individuals with lupus should be monitored to ensure their thoughts on
their body image, fatigue levels, and depression severity. These individuals must be
given access to medications, therapy treatments, or monitored help to ensure that they
are not suffering from not only lupus but other detrimental effects that can take place on
the mind.
Syuji Takei, Toru Igarashi, Tomohiro Kubota, Eriko Tanaka, Kenichi Yamaguchi, Kazuko
Yamazaki, Yasuhiko Itoh, Satoru Arai, Keisuke Okamoto, & Masaaki Mori. (2022).
Clinical practice guidance for childhood-onset systemic lupus
erythematosus–secondary publication. Modern Rheumatology, 32(2), 239–247.
https://doi.org/10.1093/mr/roab002
Williams, E. M., Egede, L., Oates, J. C., Dismuke, C. L., Ramakrishnan, V., Faith, T. D.,
Johnson, H., & Rose, J. (2019). Peer approaches to self-management (PALS):
comparing a peer mentoring approach for disease self-management in African
American women with lupus with a social support control: study protocol for a
randomized controlled trial. Trials, 20(1), 529.
https://doi.org/10.1186/s13063-019-3580-4
Summerville, J., Farahani, N., Yalavarthi, B., Aboul-Hassan, D., Rajgarhia, S., Xiao, L.
Z., Yu, C., Clauw, D. J., Kahlenberg, J. M., DeJonckheere, M., & Bergmans, R. S.
(2024). A qualitative study on opportunities to improve research engagement and
inclusion of Black adults with systemic lupus erythematosus. Lupus, 33(1), 58–67.
https://doi.org/10.1177/09612033231220168